Dravet Syndrome Foundation

Mission

The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise research funds for Dravet syndrome and related epilepsies; to increase awareness of these catastrophic conditions; and to provide support to affected individuals and families.

We understand:

• The ongoing need to fund innovative research
• The urgency in finding better treatments
• The motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies
• The importance of transparency and accountability of not only our organization, but the researchers that we fund
• The need for global collaboration in order to find a cure

History

Dravet Syndrome Foundation was founded by a group of parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in October 2009 by the Internal Revenue Service under Section 501(c)(3).

Organizational & Financial Information

As a non-profit organization, Dravet Syndrome Foundation realizes the significance of financial transparency to our supporters. We pride ourselves on maintaining operating expenses at a minimum to ensure that the generous gift of every donor truly brings us one step closer towards a cure.